Intermountain Stories

When you have a terminally ill child, every day becomes a gift

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Synopsis

Auni, Caitlin and Dallin Naulu's first baby, was diagnosed with a terminal illness—spinal muscular atrophy (SMA). Over the next 14 months before Auni passed away, Primary Children’s Hospital clinicians and caregivers, the Naulu’s, and extended family and friends helped Auni live the best life she could. She brought joy and sunshine to all. Since Auni’s passing, Caitlin, a special education teacher, and Dallin have become strong advocates for families and children with SMA. “Every day they're here with you is a day to just be enjoyed and celebrated.”