CF Matters Podcast

On this episode of CF Matters, we talk about Patient & Family Advisory Councils (PFACs) and how they fit into the Cystic Fibrosis Care Model. We discuss how PFACs are or could be organized and governed for optimal benefit of patients, families and care centers to collaborate for improvement.   Other resources to consider on this topic:   Facebook CF Family Advisory Board Collaboration Group:  https://www.facebook.com/groups/619826451452613/   The Institute for Patient and Family Centered Care:   ipfcc.orgTalk by CF Patient Tiffany Christensen about her patient experience:http://cchmcstream.cchmc.org/MediasiteEX/Play/424e67c03f79433a9937a5a7f96df1781d